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Explainer: What does “intersex” mean?

by The HUD App Team

“Intersex” is an umbrella term for natural variations in sex characteristics that don’t fit conventional ideas of strictly “male” or “female.” That might sound abstract, but it’s grounded in biology: A person born intersex has one or more traits – chromosomal, hormonal, gonadal, or anatomical – that differ from the typical male/female binary. <https://www.medicalnewstoday.com/articles/intersex>

These variations can include differences in genital appearance, internal reproductive organs (ovaries, testes, uterus), how the body responds to sex hormones, or chromosomal configurations (for example, XX, XY, XXY, mosaic patterns). The key is that the body’s sex traits don’t align exactly with typical definitions of “male” or “female.”

Sometimes this is obvious at birth (for instance, ambiguous genitalia), but in many cases it only becomes known later – during puberty, fertility workups, or even by accident. Some people might carry an intersex trait their whole lives without ever knowing it.

How common is being intersex?

A difficulty is that we do not have reliable historical data, for various reasons, but these facts and figures are emerging. Estimates vary depending on how broadly “intersex” is defined. Some sources include a wide range of variations (even mild ones), which gives prevalence of up to about 1.5–2 %. Other definitions, limited to more visibly atypical traits at birth, yield lower rates – on the order of 0.02 %–0.05 %. <link: > In short: Intersex traits are rare, but not vanishingly so.

The difference between intersex, gender, and sexual orientation

Being intersex is about physical sex characteristics, not about how someone identifies their gender (male, female, nonbinary, etc) and not about whom they are attracted to. An intersex person may identify as male, female, nonbinary, or “intersex” itself. This means intersex people can also be transgender (if their gender identity doesn’t match what was assigned), though many are not.

Medical and ethical considerations

Historically, when a baby was born with ambiguous genitalia or other intersex traits, doctors often performed invasive surgeries or hormonal treatments to “normalize” their bodies to fit male or female norms. These interventions were often done at a very young age, long before the person could consent. More recently, many intersex advocates and medical professionals argue strongly against performing non-essential surgeries or treatments until the individual can make an informed choice.

Because intersex variations are so diverse, medical needs also vary. Some intersex traits have no health impact; others might require monitoring (for example, for hormone balance or reproductive health). The language “disorders of sex development” (DSD) is sometimes used in medicine, but many people prefer “differences” or “variations” because they don’t want their bodies described as a “disorder.”

Respect, bodily autonomy, and informed consent are central issues in contemporary conversations about intersex healthcare and human rights.

Social challenges and rights

Intersex people often face stigma, misunderstanding, and discrimination, starting from birth. Legal protections vary by country, but many intersex advocates seek laws that prohibit non-consensual medical interventions and protect individuals’ rights to bodily integrity. In 2024, the United Nations Human Rights Council adopted its first resolution specifically protecting intersex people, calling on states to end harmful practices and discrimination.

Understanding what it means to be intersex helps break down stigma and misinformation. Intersex people have always existed, and their bodies are simply part of the natural diversity of human biology. Being intersex is not something to be “fixed.” It is something to be respected.

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